It's been 2 1/2 months since surgery. Ashlyn is fully recovered, and we are going into a new season of our lives. Just tonight I was saying to Eric that I can't believe we went through three heart surgeries and how thankful I am that we don't have to think of anymore ahead. Ashlyn turned 3 last month, and she loves being 3! She was able to get through the entire recovery period without getting sick. This week though she did weather some fevers, but she is well now, and her appetite really has been the best it's ever been. Her sleeping is a little better, but we still have some nights that she wakes up one time. She gets her Mommy all to herself while her big brother is in Kindergarten all day. However, she does have a lot of time during the week in therapy. She has all new therapists now that she's three...speech, OT, PT and a special teacher. Although she is developmentally behind in these areas, she really is making progress every week, and hopefully now that her heart is fixed she can catch up. We are getting used to her new routine.
Ashlyn had her yearly visit with the endocrinologist last month. She does not need any growth hormones right now because her growth is actually quite good, and she is in the 75th percentile compared to other girls with TS. We also went down to CHOP this past Friday for her echo and cardiology visit. She will still need her heart medications for now, but she is off of Lasix, and there has been no fluid build up, and she is now clear of any post-op complications. I think her doctor really expected there to be more complications and attributes it to her being lucky, but I know that all of the prayers sent her way had more to do with it than luck. Her pulse ox in the office was 84%, but today at home while asleep we got a reading of 90%. At this point Ashlyn will only need to see cardiology every six months. Later this month she will visit the Feeding Team, who will evaluate her growth and manage her tube feedings.
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